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Improving Care for Chronic Conditions - the added value of eHealth (2005)

Recognised Medical and ICT-experts met to exchange their views at our recent conference in Rome titled "Improving Care for Chronic Conditions - the added value of eHealth". While ICT experts were informed about the tremendous raise of chronic conditions foreseen for the upcoming decade, health professionals understood that the eHealth services being recently implemented across Europe will be a useful tool to cope with their growing burdens of demands for cure and care. [01.09.2008: due to a last-minute glitch in the ongoing relaunch of the website please allow a few days until all documents links are updated for the presentations download]

Organized with CNR, National Research Council Institute of Italy, Institute for Biomedical Technology (eHealth Unit) in cooperation with ESQH and NIZW

Summary of some key findings of the Conference

  • Chronic diseases will highly increase the burden on European Health Systems, e.g. the number of diabetic patients is about to double until the year 2015 
  • Primary care will have to tackle most of the increasing demands for care.
  • eHealth tools may and must contribute to avoid that primary care professionals are burned out by the expected increase in demand for care.
  • Hospitalisation of chronically ill patients is a "failure" for the health system.
  • eHealth improves the quality of life of the chronically ill by enabling home care.
  • Disease management programmes cannot be efficient without electronic documentation.
  • Chronic diseases are becoming the use case for the large scale deployment of electronic health records (EHR)

This conference has been the first public activity of the EHTEL Task Force on "ICT Supported Disease Management". Please use the contact form for further inquiries on the task force activities.

Proceedings, Monday, 10 October 2005

Plenary Sessions

Opening Sesson (1)

Welcome by Italian National and Regional Authorities Italian Ministry of Health
Walter Bergamaschi (General Director for Information Systems)

Italian Ministry of Innovation
Paolo Donzelli (Ofiice of Studies and Technologies)

New Approach to Chronic Illness, Patient orientation; Epidemiology:  The Example of Diabetes
Thomas Pieber (Medical Director Graz University Clinics, Austria)

Plenary Session 2:
Needs, Chronic Conditions, Disease Management: eHealth as an enabler for Healthcare
Chair: Ian Callanan (ESQH)

eHealth in Support of Disease Management for the Chronic Ill:  Experiences from Demonstration Projects and Medicare
Ticia Gerber (Vice President of International Programmes, eHealth Initiative, USA)

Optimising Healthcare Processes through IT
Karl-Jurger Schmitt (EHTEL Vice-President; SIEMENS, Germany)

Integrating Care for Chronic Conditions through a lifelong EHR
Angelo Rossi Mori (CNR - ITB, eHealth Unit, Italy)


Thematic Parallel Sessions (TPS)

TPS1 Managing the Culture Change in Health and Social Care

 Citizen-centered online eHealth services - an enabler for better prevention and health care?
Iviva Milicevic, Kevin Cullen (Work Research Centre, Ireland) Karl Stroetmann, Veli Stroetmann, Alexander Dobrev (empirica, Germany)

A simulation tool to support customization and evaluation of disease management programs
Antonio Grieco, Luca Castelluzzo (Universita di Lecce, Italy), Rodolfo Rollo (AUSL Lecce 1, Italy), Marina Panfilo (Pfizer Italia, Italy)

Consent-based access to core EHR information
Jacob Hygen, Torbjorn Nystadnes (KITH, Norway)

Impact of call centres and information systems on the management of elderly people
Nicola Pangher (ITALTBS, Italy)

The Mobinet business case for effective disease management
Pantelis Angelidis, Markela Psymarnou (VIDAVO, Greece)

SNOMED as Reference Terminology: The example of Chronic Care
Kevin Donnelly  (SNOMED, USA)

TPS2 Tailoring eHealth to Disease management

Roles of clinicians in a process of successful deployment:  functional specifications and knowledge formalization
Fabrizio Consorti ("La Sapienza" University, Italy)

The Map of Medicine - a knowledge framework for mibilizing best practices*
Mike Stein (Chief Medical Officer, Medic-to-Medic, UK)
*Use the website contact form for further information on the demonstration

Designing a regional disease management program in Southern Italy:  Early lessons from Project Leonardo
Ambrogio Aquilino, Rodolfo Rollo, Marina Panfilo, Donna Lichti, Umberta Pasetti

Patient Empowerment for HIV Monitoring with ICT Support
Claudio Arici (Bergame Hospital, Italy, and Gianotti Nicola, Massetti Anna Paola, Angelo Summa, Francesca Incardona, Ricci Fabrizio, Angelo Rossi Mori)

Lessons learned from the management of a Knowledge Centre for health professionals
Michele Tringali (Lombardia Regional Authority, Italy)

Heartwatch: An example of how information technology can be used to support a cardiovascular secondary prevention programme
Brian Meade, J. Leahy, S. McGuire (Irish College of General Practitioners, Dublin, Ireland)

TPS3 ICT Infrastructure for Long Term Conditions: State of Art on Tools, Standards and Interoperability

Chair: Jürgen Sembritzki (ZTG GmbH, Germany)
Rapporteur: Massimo Mangia (HL7 Italy)

A reference architecture for a reliable EHR in Italy
Stefano Lotti (Innovazione Italia, Italy)

Lesson learned for the application of EN13606 to chronic care
Adolfo Muñoz1, R.Somolinos1, M. Pascual1, M.A. González1, J.L. Monteagudo2 and
C.H. Salvador1 (1- Bioengineering and Telemedicine Lab. Hospital Universitario
Puerta de Hierro IMSALUD; 2- Research Area on Telemedicine and e-Health.
Instituto de Salud Carlos III. Ministerio de Sanidad y Consumo, Spain)

Introducing a repository for clinical documents in a wide area

Paolo De Nardi (Local Trust and Hospital Padova, Italy)

Borderless health care for chronic patients: Interoperability needs and processes
Karl Stroetmann, Veli Stroetmann, Daniel Spichtinger (empirica, Germany), Stephan Schug; Marc Lange (EHTEL), Ramin Tavakolian(ZI)

Proactive Health Technologies at Home for a Swiftly Aging Planet
Joseph Dalton (INTEL research lab and manufacturing facility, Ireland)

Promoting self-management of chronic diseases: Adaptable, web-based decision support tool allows implementation across diverse healthcare settings
Donna Lichti, Diane Ito, Ahmar Iqbal (Pfizer Health Solutions)
Michela Procaccini, Paolo Rota Sperti (Pfizer Italy)

TP4 ICT Solutions and eHealth Services for Home Care

Chair: Angelica Frithiof (EHTEL Board of Directors)
Rapporteur: Cristiano Paggetti (Iplus, Italy)

Effective e-applications at home
Ludovicus G.H. Koren, Francesco Franchimon, Johanna E.M.H. van Bronswijk (Technische Universiteit Eindhoven, The Netherlands)

Remote Management of Integrated Home Care Services: The DGHome platform
Cristiano Paggetti, Elena Tamburini (Iplus, Italy)

ICT distributed systems for Telemedicine and Telediagnosis
Antonino Giannone (Management and ICT Consultant); M Sparpaglione (MSWebcare – Division of Microsystems Srl, Italy)

"Serenità a Casa": Innovation and Quality of home care services
Anna Citarrella (Baxter Italia)

Aging in place by use of technology
Helianthe S.M. Kort, I van Hoof, Froukje van Dijkenosé (The Netherlands)

An integrated Home Care ICT system increasing Quality of Life
Fabio Buccolini (Vox Net SC, Italy)

Plenary Session 3

Achieving eHealth-Interoperability in Europe
Reinhold Mainz (Chair, EHTEL Health Care Authorities Stakeholder Group) 

Tuesday, 11 October 2005

Plenary Session 4

ICT-supported Disease Management: Success Stories and Lessons Learned on the Deployment of European Projects
Massimo Massi-Benedetti (Università di Perugia, Italy)

Plenary Session 5: Report from the Thematic Sessions

Outcomes from Thematic Session 1: Managing the Culture Change in Health and Social Care
Rapporteur: Ian Callanan (ESQH)

Outcomes from Thematic Session 2: Tailoring eHealth to Disease Management
Rapporteur: Stephan Schug (EHTEL)

Outcomes from Thematic Session 3: ICT infrastructure for long term conditions: state of art on tools, standards and interoperability
Rapporteur: Massimo Mangia (HL7 Italy)

Outcomes from Thematic Session 4: ICT solutions and eHealth services for home care Rapporteur
Cristiano Paggetti (Iplus, Italy)

Plenary Session 6

Care for Chronic Conditions from a Global and Primary Care Perspective
Line Kleinebreil, (Vice-chairman PCD Europe, France)

Round Table: Views from the Stakeholders in Healthcare, Health Policy, eHealth and Industry
Chair: David Lloyd-Williams (EHTEL Board of Directors)
Invited Statements from Angelica Frithiof (EHTEL), Ian Callanan (ESQH), Johan Beun (NICTIZ), Donna Lichti (Pfizer), Fabrizio Carinci (BIRO), Jeremy Bonfini (INTEL), Karl-Jürgen Schmitt (SIEMENS) followed by statements from the plenary and a discussion on
Next Steps for Implementing ICT & EHR as enabler for the Integrated Care for Chronic Conditions

Closing Note – Outcomes of the Conference:
What can be recommended to Policy Makers and the EC? What can be recommended to the Stakeholders?

Karl-Jürgen Schmitt (EHTEL Board of Directors)

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